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Cystic Fibrosis 65 Roses01 by HollomanM89 Cystic Fibrosis 65 Roses01 by HollomanM89
Photos Taken By: Mental Image
Model: (My Medication) :P

What is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

  • clogs the lungs and leads to life-threatening lung infections; and
  • obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Signs and Symptoms of Cystic Fibrosis:

  • very salty-tasting skin;
  • persistent coughing, at times with phlegm;
  • frequent lung infections;
  • wheezing or shortness of breath;
  • poor growth/weight gain in spite of a good appetite; and
  • frequent greasy, bulky stools or difficulty in bowel movements.

Statistics:

  • About 1,000 new cases of cystic fibrosis are diagnosed each year.
  • More than 70% of patients are diagnosed by age two.
  • More than 45% of the CF patient population is age 18 or older.
  • The predicted median age of survival for a person with CF is in the early 40s.

For more information on how you can help, please visit: www.cff.org/

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:iconkieroni101:
Kieroni101 Featured By Owner Feb 3, 2014  Hobbyist Traditional Artist
Ah, love your pictures. ^^ Nice modeling with the enzymes. X3 I try to raise awareness on here, but I don't have many who view my stuff. Maybe you'll have more luck then me! 
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:iconhollomanm89:
HollomanM89 Featured By Owner Feb 4, 2014  Hobbyist Writer
Oh, do you also have Cystic Fibrosis? I have been looking for more people like me who struggle with it. You know, it's nice to talk to someone and maybe share tips and tricks to manage it better. :)
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:iconkieroni101:
Kieroni101 Featured By Owner Feb 4, 2014  Hobbyist Traditional Artist
Yes, my older brother and I. ^^ It is nice, and I'm one of the lucky few who can constantly talk to someone, (my brother) but it's nice to talk to someone not related to me. X3 Tips and tricks are good. Various little things have helped my brother and I manage with things better. Sorry for my garbled response. Lack of sleep. :sleepy: 
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:iconhollomanm89:
HollomanM89 Featured By Owner Feb 4, 2014  Hobbyist Writer
I understand the lack of sleep thing. I recently ingested an undercooked hamburger...I've been sick for 24 hours or so. ^^; Nausea kinda kills my ability to sleep. I spent a lot of my time worshiping the porcelain thrown, if you catch my drift. lol
My brother was lucky enough not to end up with CF, so I have no one close to me that I can confide in about it. But I'm glad to be able to talk to you. :)

What part about CF bothers you and your brother the most? The digestive thing or the breathing problem?
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:iconkieroni101:
Kieroni101 Featured By Owner Feb 5, 2014  Hobbyist Traditional Artist
Eeeehh... Yeah. Know the feeling...

My brother and I managed to beat the odds. =P The whole "Don't be near each other" rule has made me feel a bit alienated. I need someone to talk too, but they won't let me get near enough to anyone to have any sort of interaction. Yay for the interwebs! =3 (They tried to pull that rule about my brother and I, they didn't try to do it again. ;)  )

I think that the breathing stuff is the more obvious and 'in-your-face' sort of thing. It's also what deteriorates the most as we get older. (My brother would agree. He's eight years older then me...) Though the digestive stuff can be more.... Embarrassing...

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:iconhollomanm89:
HollomanM89 Featured By Owner Feb 15, 2014  Hobbyist Writer
Glad that you and your brother can be close. At least you both have similar germs as opposed to being around a stranger with CF. ^^;
The breathing stuff is definitely a bigger problem. But the digestive stuff has been really bad as of lately. Any time I get an acid reflux flare up, I get sick to my stomach and eventually yeah...I'm sure you can guess. The gas and bloating is really embarrassing, especially in class. ^^; And if I forget to take my enzymes...oh boy... lol
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:iconkieroni101:
Kieroni101 Featured By Owner Feb 16, 2014  Hobbyist Traditional Artist
Yeah. Breathing is more noticeable, but the digestive stuff stinks. (And you can't really explain it either!) I know what you mean. I ran out of bags to do my night feed for three nights, and then where I hooked myself back up three days later, my stomach was not happy. XP
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:iconhollomanm89:
HollomanM89 Featured By Owner Feb 23, 2014  Hobbyist Writer
Yikes...you have a feeding tube? Sounds horrible. :\
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